What are some organizations that can help a family cope with a child's disorder (web links)

http://www.med.umich.edu/1Libr/yourchild/chronic.htm

http://www.myparentime.com/articles/09/articleS704.shtml

http://cfcenter.stanford.edu/Supporting%20Loved%20Ones.html

http://www.joshandfriends.com/partners/

What limitations does the person have?

mainly the only difference for persons with cystic fibrosis is having periodic visits to the CF clinic. Also those with CF cant do as many physical activities

What is everyday life like? What is the quality of life?

• Those with cystic fibrosis live their lives like any other person. The only
  difference is when they wake up someone must pat their back for at least
  twenty minutes to clear mucus from their lungs so they can breathe better.
  Those with CF can exercise but become tired faster than those without
  it.
  

• Before eating they must take vitamins and other medication in order
  for them to digest food properly
  

How possible is it that a cure will be found?

At this stage there is no cure for CF. However, treatment helps people with CF to grow and develop as near to normal as possible, but they frequently need hospitalisation.